Thursday, August 15, 2019

"Grammy, do you know who is my favorite person in the world?"

Nell asked me that last week.


"Your daddy?" I replied.

"No."

"Oh, it must be me, your grammy!"

"No."

Then I guessed a few more, like her mommy or her Mimi, or her cousin Enza.

"No."

Then she said, "He's in this room, Grammy!"

Ah. LIAM!!!!!

That is Samuel WilLIAMs Carmack VII. (Yes, he's the seventh!)

He is 3 1/2 - will be 4 November 1st - and is he special!!
And Nell is the best kind of big sister he could have.

Liam is super special - in many ways.
When he was a few months old he was diagnosed with Chromosome 18-p deletion. You can find out more about that by visiting The Chromosome 18 Registry and Research Society.



Frankly, it was a devastating diagnosis. It would mean slow development on many levels, and yet no one is the same with this deletion. So how he will 'turn out' is yet to be determined. AND YET, I choose (as do his parents) to not try to figure out how he will be in the future. He is who he is NOW. And he is precious. And he is wonderful.


He goes to a special needs preschool provided by the wonderful public schools here - and we went to his little end-of-the-year ceremony in late May. It was sweet.
Here he is getting a little treat from his teacher.
(I didn't include everybody's picture - because I didn't get permission.)


And here is his locker...



And here he is leaving the ceremony with his daddy and his big sis...


And here are a few more pictures of him lately...
That is one of his favorite toys.
It plays little songs, and has knobs he can turn, etc.
He goes for it first thing.


Oh, and he loves to bounce balls, especially these big ones.
I got them at Walmart for $2.98 each.
Or they may have been $1.98.
That's Nell giving him one.

Here are Nell and Liam at the park a while back.

And in the house...


One wonderful thing about Nell is that when she is playing with like a doll house, 
or blocks, or whatever toy and Liam comes along and hits them all,
Nell doesn't bat an eye. She just puts her toys back where they were.
Now that may change when they get older (she's five),
but for a child her age whose brother
messes with her stuff, well, she doesn't scream at all.
Me, I'm yelling, "Liam, NO!"
I'm learning to be better, though.

So this is my little blog post about Liam and his loving big sister.

Life is sweet.

Oh and here I am with him last week...


And here is Nell writing his name, and her name and other names of people she loves
in a notebook that I have - and will keep.

Oh my. Life IS sweet.

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